Well I bet you want to know all about my first week of chemotherapy.. But guess what? You are asking the wrong person for the details. I am basically just as lost as you are! The past 4-5 days have been quite the blur.. I will do my best to recount the experience.
First of all, I am still on drugs. So I apologize if you can't understand the majority of this blog entry.
Anyway! I had surgery on Monday!! It was actually a "port-a-cath" that was put in, not a picc line. I was a little impatient waiting for the surgery because I had a date that night, that I didn't want to miss. It all worked out just fine, luckily. Phew! I just happened to underestimate the intense amount of pain that I would be in during the date with Courtney. It doesn't take a genius to figure out that you should get some rest following surgery... or maybe it does? Oh well, I didn't put two and two together on that one. I was really glad I went on the date though. It was a great "last hoo-rah" before my mysterious battle with chemo began.
Tuesday rolled around! It was similar to Christmas morning, but kind of the opposite. Lots of excitement and nerves... just for the wrong reasons. Hopefully that doesn't ruin Christmas for anyone! We grabbed everything we thought we would need, and off we went to the hospital! We checked in, I changed into my fancy little gown, and I layed in bed at 9am. Things didn't really get rolling for a while. They had to analyze my urine. You know how hard it is to pee on demand? Well its even harder to do it two times in a row. They messed up with my first sample, and came back ten minutes later needing another sample.. I mean come on, give a guy a break?!
Eventually a nurse came in to draw some of my precious blood. She made the mistake of trying to draw it from my arm... OH NO! That was not gonna happen. Why in the world did I get this port surgically placed, if they weren't even gonna use it?! I made sure to point that out to her. I thought I had won that battle, until a man came in with a different kind of needle to "access" my port. You just can't ever win when it comes to nurses and needles.
Later that night the chemo drugs were finally prepped. A few friends were about to see something for a first (and hopefully a last) time. A friend getting chemotherapy before their eyes!! I was intrigued by the whole situation, because it was all new to me. I was quickly brought down to the reality of things as the nurse approached me in a hazmat suit (ok, maybe a slight exaggeration). Wait a minute... shouldn't I have been wearing one of those protective suits..? One last thing that I remember. The jolly old nurse Gene, told me that I needed to flush my urine twice because it was considered "toxic waste". As I drifted to sleep that night, I remember thinking I may wake up as some sort of superhero (due to the radioactive waste talk)... But alas the mask wearing days haven't come (yet).
Well pretty much every other day in the hospital is a giant blur! I don't remember a whole lot of anything else. A few faces here, and a few jokes there. But for the most part I spent my time in the hospital staring at the back of my eyelids. I do appreciate everyone that came to see me (even if I was unconscious at the time). The thoughts, prayers, and visits have made a world of difference.
Coming home wasn't all that I had expected. I can't remember a whole lot of my time since I have been home, but I know I have been surrounded by great people. Most of the time I can be found sleeping around the house. That is my favorite way to pass time lately. It also helps with the "skin crawling" syndrome I seem to have developed. I can't sit still for very long. Its hard to focus on one thing. It is like being hungry, but nothing sounding good. I just can't make up my mind... and when I do, it isn't up to par. Oh well. That is just something I will have to deal with I guess.
Today was a good day though. As a backstory, I served in the NYNYS Mission under President and Sister Calderwood. The whole mission was fasting for my family and I today. This really touched my heart. I have had countless others tell me that they were fasting for us at different times, and I really can't even begin to say thank you enough. We ended this Sunday with a little Sacrament meeting in my living room (courtesy of my bishop). Spiritual thoughts were shared, and happiness was felt. It was a good ending to a tumultuous beginning.
One thought stands out to me as I close this weeks blog entry. I hope that none of us will ever ask the question "Why do bad things happen to good people?". I have thought long and hard about this question. It helps to remember that the greatest person to ever live, Jesus Christ, had the worst possible thing happen to Him. I believe that Jesus kept His scars, on His otherwise perfected body, as proof that just because bad things happen to good people, it doesn't mean that God doesn't love them. In fact I would imagine Christ grew closer to His Father in those fatal moments of His life, than any other. When we face those dark moments in our life, we can decide which way we turn to. The choice is really all in our power.
We all have trials but it is my belief that we "can-cer vive" anything that life tries to throw at us. Just remember that life is whatever we make it. I choose to make it good, cancer and all.
You're a great writer Sean. We've been checking your blog daily do it's nice to "hear" from you today. Keep up the great attitude. You're a wonderful example of faith. Big hugs to you from our fam.
ReplyDeleteI concur that your future should indeed include writing!!! You have a gift!
ReplyDeleteI also want you to embrace sleeping for now as you heal to strengthen up for round two. Here comes the mothering... Treat yourself like one does a newborn. We keep the baby from the general public due to the lack of an immune system. I know it's hard but you are precious and I want you safe. I worry that we are walking cootie factories!!!! FaceTime and skype have no germs 👀 . It's hard cause your such a social butterfly hehehe
We are praying and loving you Sean!! From over here!!! We have both FaceTime and skype whenever your up for it !!
Love,
Sheryl
Thank you for the update. I love the way that you write, it just draws us in. I agree with Sheryl about your immune system. The chemo just kills it. When people come to visit you either need to wear a mask or they do or when you are out in public. Especially at the Dr. or at the hospital where sick people go. When my husband had his bone marrow transplant they gave him a special mask. It is a NIOSH N95 mask It is similar to what welders wear. Here is a web site you can find them on but there are many others as well. http://www.amazon.com/3M-8212-Particulate-Welding-Respirator/dp/B00065UJT6. Also you need to be careful what you touch in public. Kent and I have totally traded places. I open all doors for him and push the elevator buttons. He does not touch anything because you just don't know what germs are lurking there. Hang in there and be seanstrong. Darla Hurst
ReplyDeleteSaw your blog link on KSL. Attitude is a big part of healing. Think of how placebo medicines work. Your brain actually heals your body just because it thinks you are getting healing medicine. You are young and strong. I think you will do fine. Many people die because they give up or just can't handle the damage that chemo does to the body. You can win the fight. Your second phase of chemo will really wear you down. Have faith, and have faith in the faith of others.
ReplyDeleteAbout 18 months ago I was diagnosed with stage 4 colon cancer with many tumors in my liver. Not good. Stats I read said 6% survival rate. I did 6 months of chemo. My hands and feet are still numb. Major colon and liver surgery after that. I thought I was done, but scans showed more cancer so I started 6 more months of chemo. Just finished. Scans show no more cancer, so I may be in remission. Time will tell. I credit many prayers on my behalf, the fact that I was in good shape when all this began, and a positive attitude.
Hang in there. You are not alone.
I found your blog thru ksl. You have an amazing attitude and a wonderful writer's voice in telling your story. I will pray for you and your family and hope you find continued comfort, peace and the love and support of friends and family. Cheering you on from West Jordan!
ReplyDeleteHi Sean, I found your blog through KSL. Your red chemo looks just like the Adriamycin chemo I had in December and January for breast cancer. Chemo is hard and you need to listen to your body and rest. It is amazing how tired it can make you. You will have some good days as well once the side effects wear off in between treatments, enjoy them but also be careful in public when you counts are low. I was diagnosed just after my 40th birthday. I have a 10 year old daughter and it has been hard watching her worry about me. Feel free to check out my blog: aimeebrothersen.blogspot.com. I have detailed every round of my treatments so far. You have a really good attitude and it will get you far. I have kept a good attitude during my treatments but there were days I just needed to cry. God is good and he does hear our prayers. I have had so much comfort through all of this and feel so much closer than before. There is a reason we go through trials and we always emerge stronger and with more compassion. I love how "different" I am now because of my trial. I will be be praying for you.
ReplyDeleteI found your blog through KSL. I had a sister learn she had stage 4.5 cancer and passed away exactly one year almost to the day that she was diagnosed. She had the same upbeat attitude that you do and actually looked on it as a blessing and constantly talked about the blessings she was receiving even through the chemo and being sick. I will be praying for you, and I want one of your bracelets but don't live near enough to visit. How can I get one?
ReplyDeleteMy own 14 year old son was diagnosed with synovial sarcoma on July 28th of last year! I will never forget that dreadful day as long as I live! Like you - his cancer was misdiagnosed for 2 1/2 years. We went to some of the best hospitals in the country.( Cleveland clinic and Pittsburgh Children's hospital ). They all agreed it was synovial cyst- nothing more. After continued pain and lack of motion in his knee joint we finally went to a knee specialist in Cincinnati. He was the one who finally decided to remove it. Thankfully the cancer had not spread and it was still very small (8 mm). He did not need chemotherapy but I am here to tell you that by the grace of God, some very powerful priesthood blessings and many many prayers.... HIS leg was saved (mayo clinic wanted to amputate at first). and he is doing very well! Ironically his bracelets said "Hunter Strong".- coincidence.... I think not! Read the talk- The Ministry of Angels!
ReplyDeleteI also found your blog through KSL and just wanted to say "Keep Your Chin Up!"
ReplyDeleteMy family is unfortunately no stranger to the C-Word. My younger sister died at age 8 of leukemia. My younger brother died at age 12 of bone cancer. My mom is a 21 year SURVIVOR of breast cancer. People often ask how it didn't just tear us apart and the answer is our Faith...Faith in the Lord's plan, Faith that we'll be together, Faith that this life is not the end. You'll have good days and not-so-good days ahead but keep the Faith and the Lord will bless you!
You are right, we do all have our own inner battles, some more literal than others! Like you, my battles are on the inside and have been since childhood. I'm 23 now and have those 'awkward moments' of explaining (or attempting to) why I'm not in school, on a mission, married, or even working!! You sound like you have a great support system, be grateful for them. Don't beat up yourself for down days and for days where you question your faith...it's normal to feel that way and to grieve. There is great medical care up there while I was at school, they helped make a scary time a little less scary for me!
ReplyDeleteMy name is Sasha. And my husband Jason was diagnosed with dedifferentiated chondrosarcoma last year. Hes had surgery and just finished chemo. I love your attitude! Yes the chemo sucks! We decided to stop after 4 cycles (he was supposed to do 6) BC he was getting nerve damage. I would advise that you let your oncologist know of all your symptoms no matter how small. So your medication can be adjusted to avoid anything permanent. We ended up seeing the documenary truth about cancer. And it answered a lot of questions for us and gave us so much hope for beating cancer in the long term. Keeping an optimal immune system is key for long term. Luckily we already had our 3 beautiful children so the sperm wasn't an issue; ) I'm sorry to hear of the trial you are facing.
ReplyDelete